Ben woke up this morning in a full fledge crying fit. It was about the time I relieve the night nurse, so I was able to watch the whole thing unfold first hand. I picked him up and tried to comfort him... didn't know if his ears were bothering him (unlikely to cause this kind of reaction), wasn't feeling well (had a great nights rest with great sats all night) or just woke up grumpy/scared from a bad dream.
A few minutes after holding him and turning off his feeds, Ben started vomitting. Since he eats 80% of his daily food at night, he has a super full belly in the morning. He vomitted twice bringing up a LOT of food (probably 300 mls total). He then had super bad dry heaves for the rest of the morning. I'm so thankful my mom was here to help. It took both of us to keep up with the constant suctioning of the mouth, trach and ears (yes, vomit comes out Ben's ears since his nasal passages are closed)and the comforting of poor Ben.
He is getting a small amount of Pedialite through his feeding tube and seems to be feeling better. He is even napping right now. The true test will be when he wakes up. It is just so hard to know if he simply got upset because his belly was full. And that hard crying started the whole process of vomitting. Or if he caught some bug at the doctors office yesterday. Or if he just is having trouble tolerating his feeds again.
Ben has never had a fever and I don't think is able to, he doesn't get runny noses because of his closed nasal passages, his secretions from his trach never change color and the amount of them is different every day. He almost always has an ear infection so that doesn't help, he can't tell us if he feels too full, has a headache or body ache. I wish I knew what he was feeling so I could help him with treatment. Poor little guy... how frusterating for him.
5 comments:
Oh Amy, I'm so sorry to hear Ben was sick. It breaks my heart, as well, to know he was sick and there's nothing you can do for him or don't know why. I'm sure it was very frustrating for you. Hopefully when he wakes from his nap he'll be feeling better and it was just a stomach bug or something. I'll be thinking of him.
Boy can we appreciate this! Sometimes Evan wakes up in the morning crying and gagging (we don't get the vomiting, courtesy of a super tight nissen). I wish that Evan had a way of communicating what he was feeling. It's obvious he is upset, but why? I'd like to think being able to say "mommy (or daddy) I don't feel good" would make it a little bit better for him, but maybe it would just make me feel better.
Hugs,
Sarah, Jeremy, and Evan
Poor Ben! I hope he feels better soon. Eva has had a few mornings where she wakes up screaming and we do not know why.
Hugs,
Crystal and Eva
OH I feel so horrible for you all. I wish there was something I could do or say to help you all. I will pray for you all. Try to catch up on your rest too when he's sleeping. Hope to hear he is better soon.
God Bless,
Brian, Sarah, and Caleb Hlebiczki
So sorry for you all, that is absolutely the worst feeling for us (trying to stop a gag reflex and the aftermath of re-setting feeds and what not) Lucas just has this look when it happens that is just as confusing. It is so frustrating to not know why; guess it's a CHRAGE thing. Hope you all catch your breath and break soon!! Also, praying for your school nurse to come thru for you as well... ... Lucas had to go to the ER for a G-tube replacement last night (first for us) so he wasn't a happy guy either... ...
Post a Comment