We got a second opinion about Ben's airway from the head of the ENT Division at Cincinnati Childrens. Dr. Cotton did agree with our ENT that it does appear that Ben has an overactive larynx and nothing can be done with it until it settles down. Time will tell. He also thought it was fair for me to request Ben's coanal atresia surgery to be fixed without stents (I found some research on the stentless method working for some kids with at home dilation and steroid drops daily after the procedure). I just really thought for Ben that the stents were causing so much irritation that as soon as they were removed, major scar tissue formed. The entire time the stents were in, he had HUGE amounts of drainage flowing from them 24-hours a day. You may remember seeing pictures of Ben with the gauze contraption I rigged up and taped to his face to absorb the drainage. It was horrible for him (and us too).
The plan is to try to fix his coanal atresia (nasal blockage) even though there are no plans in the future to do his airway. That has been scheduled for October 17.
Here is a picture from the last time Ben has his coanal repair attempted. Poor guy.
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