Starting to Stress

The good news is whatever made Ben so sick last week only lasted until afternoon. I switched him over to Pedialite for the day and feed him at a lower rate (which is funny to even say considering he eats so slow on a regular day) and gave him less total volume. It worked and by Wednesday he was just about back to his old self. Hopefully the vomiting didn't do anything to his airway to affect our scope on Wednesday.

Speaking of the scope, that upcoming procedure is now starting to really stress me out. I have the usual stress of just putting Ben under, trying to start an IV on his little fragile veins and everything going ok. My major stress is about the results though. We have waited almost tow years for this scope. Ben hasn't had any major illnesses, his secretions have improved greatly, we haven't done any feeds or tastes by mouth, Ben has grown a lot and he now has the ability to make noises. If his airway is still inflamed and unable to be repaired because of that horrible inflamation, I've pretty much come to the conclusion that his trach will be with him for life. That is news I'm not quite ready to hear and afraid of hearing on Wednesday. I'm hoping and praying for the best though and I know the ultimate outcome is out of my hands.