BenRusso.com

Saturday, November 29, 2008

5 comments:

hannah m said...: Beautiful family photos!; November 29, 2008 at 5:29 PM
skeybunny said...: Happy Thanksgiving! I saw these on Facebook, but couldn't figure out how to leave a comment there.

Hugs,
Sarah, Jeremy, and Evan; November 29, 2008 at 9:49 PM
amy and mighty max said...: super cute photos...thanks for sharing! :); November 30, 2008 at 6:32 AM
Crystal M. said...: Adorable pictures!!
Hugs,
Crystal and Eva; December 1, 2008 at 7:44 AM
Anonymous said...: Hi Amy,

I keep up with Ben's blog. I just wanted to wish you all a very happy and prosperous new year and happy holidays. We have moved to Dallas/Texas. I still have the same email address.
Nurse4u@hotmail.com.
All I have to say is that you are a one strong mom.
Love,
Amynah Juma.; December 5, 2008 at 8:18 AM

About CHARGE Syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.For more information, visit http://www.chargesyndrome.org/

Saturday, November 29, 2008

5 comments:

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