I got a call from the GI doctor's office this afternoon and they have a final reading on Ben's PH/Impedance Probe. His nissen is still intact and he is doing absolutely no refluxing up from his stomach (the doctor's were surprised to see this - I wasn't because I didn't think that was causing airway damage and was skeptical when they even brought it up). Anything the probe measured came from Ben's mouth down (saliva) - so we have been instructed to do ABSOLUTELY NO ORAL TASTES OF ANY SORT. GI just wants to follow-up with Ben in a few months, but there is nothing surgically or test wise for them to do at this point. Check GI issues off the list.
Now we just need to see what ENT has to say. GI contacted them and discussed the results. Everyone was so sure reflux of some sort (acid reflux, silent reflux, etc) was causing Ben's major airway damage. ENT said once GI got a handle on those issues and fixed them, they would step in. Well, change in plans - any airway issues Ben has is now something ENT needs to address. Personally, I think it is all due to his constant aspiration of saliva. Hopefully this drool procedures fixes that. We have noticed a slight improvement in Ben's secretions (and I do mean slight). We have a follow-up appointment with ENT in a week and a half.
3 comments:
Glad you got good news from GI, Amy. It's always so nice to check something off the list! Hope you get some good news from ENT, too.
Leslie and Katie
Nice to hear the good news. And I'm praying there will still be good news coming Ben's way.
Hugs,
Carolyn in WV
Glad to hear you finally got some answers and I always say mommy knows best. No matter how many years they have been doctors or what school they went too, mom knows more about their child then anyone!!
Hugs,
Crystal and Eva
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