Saturday, February 3, 2007

Cochlear Implant

We still haven't gotten in to see the aural rehab person yet... scheduling is becoming very difficult because there aren't any availabilities on those days that I either have a nurse or my mom here to help us get there. We still need two people to travel with Ben... one to sit in the back and suction and one to drive. Hopefully we can get in soon. Ben is able to detect some noises, but he still isn't responding to all of them. We try to keep the implant on as much as possible, but because Ben spends 90% of his time on the ground, anytime he turns his head to the right it pops off. He doesn't yank it off as much as he use to though, so that's great news! It is very difficult to tell when he hears something because we have to watch for the slightest change in breathing, eye movement, body movement etc. to tell if he hears it. And, those changes need to be consistent to be sure he did hear it. Turning and looking towards a sound is something that comes later when he really starts to understand. Not to mention Ben will always have trouble localizing a sound due to only having one implant. We do know that sound is getting in (the tests show it is), he just needs to learn to make sense out of it and pay attention for the noises. We have continued to work on talking and signing together so he is getting all means of communication.

3 comments:

amy and mighty max said...

I am really sorry Amy...that must be incredibly frustrating. I know how desperately you want that help and hopefully some answers. Please keep me posted.

Amy

Leslie, Arlin and Katie Kauffman said...

Amy, if you ever need someone to drive you and Ben to therapy, I'd be glad to. And I seriously mean that--it wouldn't be an imposition. I'm at home most every morning and Wednesday and Friday afternoons, so if any of those times would work for your aural rehab, just let me know. I'd be glad to help.

I'm glad Ben is wearing the implant better, but I know the challenge of keeping it on when your child spends most of the time on the floor and the main mode of movement is rolling. We went through that with Katie for a long time.

Oh, I should share one tip we recently got from another CHARGE parent for keeping the microphone on. You know how I told you about velcroing it to the shirt? Well, this parent suggested velcroing it to the outside of the head magnet. We tried it this weekend with Katie, and it works great! It still won't help a lot with the rolling, but at least it doesn't pull off from tension on the shirt. Plus it doesn't have to be revelcroed every time you change clothes!

Call me if you need a ride--I mean it! :-)

Leslie

Crystal M. said...

I wish we were closer so I could go with and help you and then you could get the answers you need. I hope you can get in soon.
Hugs,
Crystal and Eva