This past week, Ben had his follow-up testing to see how his urinary track reflux looked after the deflux injections. We met with his Urologist to discuss the results on Friday. His doctor said that his kidneys were still small, but they looked good (not swollen or anything). He also said that his left side showed no reflux at all and his right side showed Grade 2 reflux (Ben use to have Grade 4 on both sides - so that's a great improvement). And, he said that even though the radiologist reading the results gave his right side a Grade 2, he personally didn't think it looked like a Grade 2 to him... he thought it seemed less than that. I was thrilled to hear this news. With Ben, we are usually always receiving bad news, so I've kind-of started expecting the worst - but hoping for the best whenever Ben has appointments.
The plan is to follow-up again with an ultrasound to look at his kidneys and do some blood work. If all is ok with that, no need to see the doctor until 1 year from now. The week before that 1-year appointment, we will have another kidney ultrasound, blood work and a VCUG (the test that shows reflux). I am hopeful that by then, Ben's reflux will be even less. At that time, we will decide whether to do another injection and address his undescended testes, or just address the testes if the reflux is completely gone. Some good news was nice to receive! We needed it.
5 comments:
That's great news, Amy! We're really happy for you guys! It's always great to get good news.
Hugs,
Leslie, Arlin & Katie
WOOOOOO HOOOOO! Yay for Ben...and you! :)
That is fantastic news! I'm happy for all of you that everything went well.
Love,
Theresa
Thats great news I am so happy for you all!!
Keep it up Ben!!
Hugs,
Crystal and Eva
Yay! I'm glad that the urologist was open to doing the deflux injections--it's a lot less invasive.
Hugs,
Sarah, Jeremy, and Evan
PS Belated reply to your question about Evan's pilot caps: No, they are not working very well for the hearing aids, because Evan figured out in short order how to wiggle his fingers in under the cap and pluck out the hearing aids (plus it seemed to make the feedback worse). If the CI is further back, they might work better for Ben (I don't know enough about CIs to know if they would induce feedback or not). If you want to try one, I can mail you one of the ones I bought for Evan. Let me know.
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