BenRusso.com: Ben's Home

Wednesday, July 27, 2011

Ben's Home

Ben is home. All went well. Airway is still in bad shape - no surprise there. We weren't expecting any change with it. His eye has no long term damage, which is great. We will get cat scan results and blood work later after they have been read. Have had 20 plus OR experiences with Ben and this one was by far the smoothest and the best group of people we've had working with him. Very thankful for that.

2 comments:

Leslie, Arlin and Katie Kauffman said...: Glad the OR visit went smoothly and that you were able to coordinate several things at once.; August 6, 2011 at 4:52 PM
Kurby Family said...: Very glad to hear all went as smoothly as possible, that he was in good hands, and a lot was able to get done at one time!; August 7, 2011 at 4:23 PM

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About CHARGE Syndrome

CHARGE syndrome is a recognizable (genetic) pattern of birth defects which occurs in about one in every 9-10,000 births worldwide. It is an extremely complex syndrome, involving extensive medical and physical difficulties that differ from child to child. The vast majority of the time, there is no history of CHARGE syndrome or any other similar conditions in the family. Babies with CHARGE syndrome are often born with life-threatening birth defects, including complex heart defects and breathing problems. They spend many months in the hospital and undergo many surgeries and other treatments. Swallowing and breathing problems make life difficult even when they come home. Most have hearing loss, vision loss, and balance problems which delay their development and communication. All are likely to require medical and educational intervention for many years. Despite these seemingly insurmountable obstacles, children with CHARGE syndrome often far surpass their medical, physical, educational, and social expectations.For more information, visit http://www.chargesyndrome.org/

Wednesday, July 27, 2011

Ben's Home

2 comments:

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