It's been a while, so I thought an overall update was in order:
School - Going really well for the most part with only about 1-2 major meltdowns a day. Ben seems to be picking up where he left off last year with his sign language recognition. Another great team working with Ben this year. Later this week will be school pictures and a visit from our local fire truck/department.
Trach Pulling - I'm not sure if Ben has gotten better at not trying to pull out his trach or we have gotten better stopping him before it happens. Maybe a combination of both. Ben still goes for the trach every time he gets angry, but doesn't seem he is getting as angry as often. And, when he goes for it I don't think he is really trying to pull out the trach. I think he is trying to take out the gauze underneath the trach and the artificial nose that sits on it. But, we don't take a chance and try to stop him before he can do anything.
Follow-up of Urology Surgery - Ben had his follow-up from his testicle procedure. The doctor was happy with his healing and said he doesn't need to see us for a year!! What great news! I look forward to the day when all 18 doctors only need to see Ben once a year, but until then this is still a nice treat! They will still follow him with yearly ultrasounds to make sure his urinary track reflux hasn't returned.
Hippo Therapy - Ben will start Hippo Therapy (horse back riding with an Occupational Therapist) in October. It's been a while, but I'm hoping he jumps right back in the saddle (literally) and enjoys it again.
Mum Parade- We took Ben to the Mum Parade this past Saturday. My mom and dad set up chairs early to ensure we got a good spot. When it was time to start, we walked Ben down in his wagon. Last year, Ben only had the patience to sit about 15 minutes. This year, he sat in a little chair the entire hour! I was shocked and so proud of him. And, every time someone handed him candy, he collected it all in a little pile on his left. He was so particular with where every piece went. It cracked me up.
6 comments:
That is awesome that Ben doesn't have to go back to the urologist for a year! Check that one off the list for now! Glad to hear that school is going well, and that he is not pulling at his trach as much- or at least not getting angry as often. Can't wait to hear about and see pictures of hippo therapy!
He looks so cute sitting there at the parade- I can totally picture him stashing the candy in a pile next to him!
Love the candy stash...so funny. Our kiddos definitely have their particular preferences, don't they? :)
Glad school is going well for Ben again this year! Love the picture of him at the Mum Parade! We thought about going to the Mum Festival on Sunday, but had a bunch of errands to run and didn't make it there. We've never been, but have heard it's really nice.
See you at hippotherapy in a couple weeks!
Glad the trach pulling is subsiding, regardless of the reason! :-)
LOVE that Ben made a very specific pile for his candy! Too funny!
And, so glad school is going well! Woo Hoo!
Hi there! How are you guys? Keith and I were wondering if you guys were collecting pop tabs again this year. If so, we've got a huge stash for you! I can mail them to you if you email me your address. erinnrichardson at gmail dot com. Glad Ben's doing so well and cute as ever!
Ben, you are such a big boy! I love reading about all your accomplishments! Way to go!
Love,
Brian, Sarah, and Caleb Hlebiczki
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