Ben has been recovering slowly but surely after his cast removal. He use to roll like a log to get around the house, and he doesn't do that anymore... he edges around on his side which takes him much longer, has to be more tiring and therefore doesn't go too far. He won't put any weight on his feet now too. We try to stand him and he pulls up his legs and collapses to the floor. He also won't sit independently on the floor yet. Every day we work with him on all of these things and I'm sure in time he will get there. I think he is just so weak and scared right now.
Ben starts intensive physical therapy on March 5 at Children's. His Ortho Doctor has a specific therapist she wants us to work with at Children's. The only downside is we have to take him to his appointment at Children's, we can't do home therapy (which is how Ben has been receiving all of his therapies because of his trach and involved feeding schedule). Hopefully the PT will be pretty flexible with our schedule. I have day nursing two times a week and my mom comes up at least once a week to help (much more lately). Ben will have to have therapy during one of those times since he needs two people to travel with him (one to drive and one to sit in the back and suction).
On a positive note, Ben's demeanor has been incredible since the cast has been off. He is also much stronger with his fine motor skills now. He is developing quite a list of favorites too!! He has one book that he just loves (Bath Time Peek-A-Boo) and wants to read over and over again - he pushes away any other book we offer him. He will only color with the green crayon. All the other colors get flicked off his desk WITH the green crayon. And he has two favorite toys, both that light up and play noises. Ben keeps those things running almost all day. Yo Gabba Gabba is still a fav, but he only get to watch a few episodes a day.
Sitting in my desk like a big boy.
Go Green!
3 comments:
Ben, so good to see you up and coloring at your desk!!
That's got to be hard watching him struggle to do things that had been coming easily to him. But, as you said, I'm sure he is just weak and scared. Who wouldn't be! He'll get back to all his old skills in time--these kids always do!
Good luck on the PT. Let me know if you ever need a driver--I'd be glad to drive you and Ben down to Children's some days.
Hugs,
Leslie & Katie
I love that little desk!!
I hope the new PT helps him and he can get back to doing what he was doing in no time.
Keep up the great work.
Hugs,
Crystal and Eva
I love the green crayon! Evan is really particular about some things too. He has two pieces from one of his puzzles--a dog and a cat--and he carries them around with him most of the day. He crawls with them (they have knobs), uses them to bang on the wall or his table or the TV screen, twirls them in front of his face. He just loves the dog AND cat!
This is a great opportunity to teach Ben the ASL sign for green!
Hugs,
Sarah, Jeremy, and Evan
Post a Comment