Ben had his follow-up with his Urologist this week. After Ben's last renal ultrasound, he wanted us to come in to discuss surgery plans (surgery to fix Ben's urinary trach reflux was canceled after we found out Ben wouldn't be getting off his trach soon - we decided to wait until he was older and stronger since this surgery is so involved). We found out that Ben's kidneys haven't grown since his last ultrasound. They are now two levels smaller than they should be for his age. Because of this, the doctor needs to find out if his kidneys have any scarring from the urinary trach reflux. If they do, then the open surgery needs to be done ASAP.
A test called DMSA will be performed to find out if he has scarring. They start an IV and inject radioactive fluid into his veins. They allow 90 minutes for it to circulate then take about 60 minutes worth of cat scans. They are also going to do a VCUG test to see if his urinary reflux has improved (unlikely, but we are still hoping fro some improvement). Both of these and some blood work will all be done next week, along with his cardiology follow-up and some heart tests to make sure Ben's little ticker is still doing well.
If the urology tests show no kidney scarring, then we are going to try the reflux injection to fix his reflux. Hopefully that can be done when Ben is under on June 8 (he is getting his airway scopes and his ears cleaned out).
7 comments:
I will certainly be thinking of Ben and praying for good news next week. He is such a special little boy that he certainly deserves some breaks and good news. Ben has such a great disposition through all his trials and tribulations. He such a blessing and we all love him so much.
Pap Pap
I will be thinking and praying for Ben and your all. That is alot in one day for a little man to go threw but at the sametime its good to get it all over with.
Hugs,
Crystal and Eva
As always Rich and I will be thinking of you all and praying that everything goes well, as we're sure it will. Take care. We miss you and love you.
Theresa
We hope that Ben's kidney function is stable enough for him to have the deflux injection. It worked really well for Evan, and saved him another open surgery.
Hugs,
Sarah, Jeremy, and Evan
You will definitely be in my thoughts and prayers. You are such a special little boy and have been through so much...time for all good news to go your way.
Kisses and hugs,
Gramma Mo
Ben will be in my thoughts and prayers during this procedure. Will anixiously be awaiting the results. Looking forward to my next trip up your way to visit and take Ben on another trip to the mall. Love you all.
Chuck
Lots going on for Ben next week. Hope you get some good news from all the tests. We'll be thinking of you!
Hugs,
Leslie, Arlin & Katie
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