Wednesday, October 2, 2013

2nd Grade off to a good start

Ben's school year has been going well. The same nurse is attending with him and he also has the same interpreter. Both people have been wonderful to him and he enjoys their company. I have been very pleased with his homeroom teacher this year too. Although his Resource Room teacher has been on maternity leave since the start of the school year, there has been a long term sub and Ben doesn't seem to mind her. He is once again riding the bus and we are still working out some of the kinks with that.

We recently changed the food Ben is getting through his gtube and the times he is getting it. This is the first time in his life he is eating something other than formula. It is very exciting and I was very nervous to make the change. It was something we really felt we needed to try though because his growth has been unchanged for such a long time. He is actually only 5 lbs heavier than he was at 3 years old and is now 8. He is getting something called a blended diet now. The base of his food is his formula and to that we are adding:
Rice cereal
Olive oil
Stage 1 or 2 baby food meat
Stage 1 or 2 baby food yellow or green fruit or vegetable
Stage 1 or 2 baby food orange fruit or vegetable
It makes a really thick mixture that we use a syringe to plunge into his belly instead of letting gravity take it in like before. He gets weighed this Friday and I am hopeful he has gained some weight being on this diet for almost one month now. He doesn't seem as gaggy on this food and does seem to have more energy. He has to feel better having some substance in him now.