Ben's Home

Ben is home. All went well. Airway is still in bad shape - no surprise there. We weren't expecting any change with it. His eye has no long term damage, which is great. We will get cat scan results and blood work later after they have been read. Have had 20 plus OR experiences with Ben and this one was by far the smoothest and the best group of people we've had working with him. Very thankful for that.

Visit to the Operating Room

Tomorrow morning Ben has his OR visit. The main reason for the visit is to do a thorough eye exam to make sure Ben didn't suffer any permanent damage from the injury. They will also check his vision at the same time. Because putting Ben under general anesthesia is such a risk for him (and all kids with CHARGE Syndrome), we coordinated everything else he is due for to be done at the same time. We are so fortunate to be at a hospital that is willing to let us do everything at once if it is in the best interest of the patient. Those additional things will be:
MLB - scope of his airway
Cleaning of his ears
Checking of his nasal passages to make sure they are still open
Blood work for nutritional labs and thyroid function
Head cat scan to make sure the enlarged ventricles in his brain haven't gotten any worse
Going to be a busy day, but no incisions or recovery so that is the good news. Praying all goes well and the results are good.