Hi Everyone!!!
Sorry it has taken me so long to write, I've just been VERY busy (Christmas shopping, New Years, etc.). As I'm sure most of you know, I am finally home. Yes, that's right, I'm home. I miss all my friends at the hospital, but I must say... my new digs are GREAT! I have my very own room and there is stuff to do all the time. It is truly exhausting. Swings, mobiles, toys - so much to do... so little time.
I'm starting to get on a schedule now too. Mommy keeps on trying to get me to take a nap, but I'd rather stay up all day and just sleep for 14 hours straight at night. I'm still on continuous feeds, but all my equipment (air compressor, suction machine, trach bag, etc.) can be brought downstairs during the day so I can play. I am getting weekly visits from OT and PT and those girls seem very nice -1 just wish they would stop pulling on my arms and legs... I like them where they are! The doctors must really miss me because they still want to see me every week. I can't say I blame them... I'm a joy to be around (except when I throw my little baby temper tantrums).
Daddy is going to update my website to reflect my new and IMPROVED lifestyle. I'll send out a message when it's done (Daddy isn't as good with computers as I am so it may take a while).
Thank you everyone for being so kind and thoughtful to my family. And I appreciate all the prayers and warm wishes... they must have worked!!! Talk to you later!Love Ben
